Updates

On Wednesday we took Kiya to her Neurosurgeon due to some concern that her head is not growing adequately. We had a cat-scan done that morning to make sure she was not having shunt failure, split ventricle syndrome, or any other issues. I am always nervous when I have to have to visit neurosurgery for any reason and this appointment was no different. The good news is that Kiyas ventricles are smaller indicating that the brain has filled in the extra space. The brain is also thickening as we hoped it would. Unfortunately the concern over her head growth was valid and her doctor began discussing options with us. Right now the plan is to wait two months and do a new CT scan and take new head measurements to see if there has been any growth. I need your prayers! If her head has not grown, or is falling further on the charts Kiya will have to undergo a six hour surgery to reshape her scull. The surgery is complex requiring neurosurgery, plastic surgery and maxo-facial surgery specialties. It is 5-6 days in the hospital, new scars, new worries, time away from home, recovery and resets the clock for infection. Needless to say Matt and I are devastated at this news and want to avoid brain surgery and asking our sweet daughter to endure one more trial. Please keep Kiya in your prayers and fasting. We will continue to hope, pray and love our sweet daughter.

Thanks