Little Kiya is almost three pounds! They have increased her feedings to 19 ml. every three hours. She seems to be tolerating her feedings well. Kiya had a very small feeding tube in her mouth but the nurses had to remove it. Apparently Kiya kept moving her tongue around and managed to dislodge the tube four different times. Looks like Kiya is already starting to call the shots!
Today they did a test/scan on her heart--(sorry-not to up on the medical terms). The "tech" said he thought everything looked OK. We are waiting for the official reading from one of the doctors--then we can cheer!
Tomorrow Kiya will have an ultrasound on her head. They will use the results from this test to determine the amount of fluid drawn and number of taps Kiya will continue to need. Taps are currently being performed daily. Hopefully Kiya has improved enough to get to skip a day between taps. She doesn't like having taps done.
Occasionally Kiya still has to be reminded to breathe, her symptoms are similar to sleep apnia. When she stops, she is gently touched and talked to and then she is up and running again. Once she can breathe regularly on her own, they can remove the breathing tube from her nose.
Kiya is such a little fighter. She endures all of the tests and tubes and just keeps giving her very best. The doctors have told Kris and Matt that she will not be going home before January.
We wish to thank each of you again for your support, your concern and your prayers. Kiya is truly our heaven sent gift. She has a sweet, pure spirit that can be felt when you are near her.
We love you Kiya
Grandma S
Thank you for sharing this wonderful news!
ReplyDeleteYeah!!!Good days are such a blessing. We will anxiously await official news about the heart scan... then we will cheer again, louder this time!
ReplyDeleteHello little darling...Grandma Becky here...I stopped in to see you the other day, but you were sleeping like an angel...you are so pretty Kiya and you already have long beautiful fingers - perhaps you will be a famous pianist!!!...I did talk to you, oh so quietly, and you opened one little eye at me...I like to think you were winking at me. You are so strong and such a fighter as your grandma Marilyn says...you are an absloutely wonderful miracle who is teaching us "big kids" so much...Grandpa Jerry keeps up with how you are doing each and every day...he and I both love you so very much.
ReplyDeleteI'm so glad she is starting to gain her weight back and that her surgery went well. I am amazed that she is so close to breathing completely on her own. She is such a little sweetheart. We pray for her multiple times a day.
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