Friday, January 14, 2011
Saturday, January 8, 2011
Update
Sorry the updates have been few and far between. Things are going well. We keep sending our positive energy to Kiya so she can come home. We have stopped tapping for three days now and she is doing well. Neurosurgery keeps coming by to check her fontanel and they are happy with it. Eating is an issue as she is mostly still fed via the feeding tube. She is, however, almost 7lbs! She has her mommies double chin. What a cutie! Occupational therapy works with her daily on feeding and we will do a swallow study soon to make sure everything is moving correctly.
I am really wanting her home. Not so sure about January, but we will tell her she can do it. Many a baby has gone home since we have been at Primary Children's. I am starting to covet my neighbors baby going home. In truth I wish there weren't any kids at that hospital. Kids shouldn't have to get sick!
Lex wishes his sister was home daily. He thinks that the "ridiculous" nurses are keeping her there. That is what he says. I have tried to explain otherwise. I keep adding more and more Scriptures that are comforting to me on her bedroom door. That way when I get sad that she isn't in her room I can read them and remember God has a purpose in all this. We have seen many miracles and I have a feeling we are yet to see more. Kiyas very existence is a miracle. So many doctors have later admitted that they didn't believe she would make it. You go Kiya! She is showing all of them that with God anything is possible. I have so many things that I look forward to doing with Kiya. Mostly just us being together as a family and not having to leave her everyday. She is awake more now and it is getting harder to put her in the hospital crib when she stares at me as I am leaving. I am going to make up for so much lost time. Right now I am decided on what sling to get so that she can be permanently affixed to my body when she comes home. I am not kidding! She is not leaving my side. Thanks again for all of your much needed prayers and support. They are working!
I am really wanting her home. Not so sure about January, but we will tell her she can do it. Many a baby has gone home since we have been at Primary Children's. I am starting to covet my neighbors baby going home. In truth I wish there weren't any kids at that hospital. Kids shouldn't have to get sick!
Lex wishes his sister was home daily. He thinks that the "ridiculous" nurses are keeping her there. That is what he says. I have tried to explain otherwise. I keep adding more and more Scriptures that are comforting to me on her bedroom door. That way when I get sad that she isn't in her room I can read them and remember God has a purpose in all this. We have seen many miracles and I have a feeling we are yet to see more. Kiyas very existence is a miracle. So many doctors have later admitted that they didn't believe she would make it. You go Kiya! She is showing all of them that with God anything is possible. I have so many things that I look forward to doing with Kiya. Mostly just us being together as a family and not having to leave her everyday. She is awake more now and it is getting harder to put her in the hospital crib when she stares at me as I am leaving. I am going to make up for so much lost time. Right now I am decided on what sling to get so that she can be permanently affixed to my body when she comes home. I am not kidding! She is not leaving my side. Thanks again for all of your much needed prayers and support. They are working!
Monday, December 27, 2010
Thursday, December 16, 2010
Progress!
Sorry for the lack of updates--I had to leave town unexpectedly.
The good News:
Baby Kiya is now 5 lbs 7 Oz's!! Can you believe she made it over the 5 pound mark! That gives us all such hope-doubling her birth weight!
Kiya has been in a crib for a couple of days now. That means she is breathing on her own, with no cannula, and is maintaining her body temperature. She has only had a couple of "A's&B's" since having the cannula removed. We are very excited about her progress! So, no more incubator.
Kiya only has one more tube. That is the tube going through her nose to her stomach. Incredibly, Kris was able to feed Kiya last week. This is monumental, as breathing, eating and swallowing all at the same time is a real hurdle for some babies. Kris just has the magic touch-she was able to get Kiya to feed orally on her first try. Everyone was super happy.
The doctor is happy with the results from Kiya's eye tests. Now that she is off the oxygen we are thrilled and relieved.
We just have a few more hurdles to overcome. They are back to tapping Kiya every day. The hope is that her brain will begin to absorb the surrounding fluid on its own-but Kiya is still working on that one. It was hard to go back to an everyday tap after they had started tapping her every other day.
Kiya has been too sleepy to try and orally feed again. They believe this is due to the pressure on her brain. Kiya has to stay awake while feeding because there is a fear of choking if she falls asleep.
It's great to see them dress Kiya in little outfits. It's a sign of all the progress she has made, but at the same time, a reminder of all the things Mom and Dad are missing out on not having Kiya home.
How thankful we are for the progress that Kiya has made. What a miracle she is. To see a little tiny baby fight that hard to get better is a constant reminder of the human spirit. Through all the tests, pokes, prods and discomforts her will to get healthy is unbelievable. She has a way of making you grateful for things you take for granted each day.
We all look forward to the day that we can kiss, hug and squish Kiya as much as we want. The only time that Kiya will feel a mattress when she gets home, is when she is having her little pants changed. There will be plenty of loving arms to comfort her and hands to attend to her smallest need.
That you again for all your love and support.
We love you Kiya!
Grandma S.
The good News:
Baby Kiya is now 5 lbs 7 Oz's!! Can you believe she made it over the 5 pound mark! That gives us all such hope-doubling her birth weight!
Kiya has been in a crib for a couple of days now. That means she is breathing on her own, with no cannula, and is maintaining her body temperature. She has only had a couple of "A's&B's" since having the cannula removed. We are very excited about her progress! So, no more incubator.
Kiya only has one more tube. That is the tube going through her nose to her stomach. Incredibly, Kris was able to feed Kiya last week. This is monumental, as breathing, eating and swallowing all at the same time is a real hurdle for some babies. Kris just has the magic touch-she was able to get Kiya to feed orally on her first try. Everyone was super happy.
The doctor is happy with the results from Kiya's eye tests. Now that she is off the oxygen we are thrilled and relieved.
We just have a few more hurdles to overcome. They are back to tapping Kiya every day. The hope is that her brain will begin to absorb the surrounding fluid on its own-but Kiya is still working on that one. It was hard to go back to an everyday tap after they had started tapping her every other day.
Kiya has been too sleepy to try and orally feed again. They believe this is due to the pressure on her brain. Kiya has to stay awake while feeding because there is a fear of choking if she falls asleep.
It's great to see them dress Kiya in little outfits. It's a sign of all the progress she has made, but at the same time, a reminder of all the things Mom and Dad are missing out on not having Kiya home.
How thankful we are for the progress that Kiya has made. What a miracle she is. To see a little tiny baby fight that hard to get better is a constant reminder of the human spirit. Through all the tests, pokes, prods and discomforts her will to get healthy is unbelievable. She has a way of making you grateful for things you take for granted each day.
We all look forward to the day that we can kiss, hug and squish Kiya as much as we want. The only time that Kiya will feel a mattress when she gets home, is when she is having her little pants changed. There will be plenty of loving arms to comfort her and hands to attend to her smallest need.
That you again for all your love and support.
We love you Kiya!
Grandma S.
Sunday, December 12, 2010
Wednesday, December 8, 2010
Sunday, December 5, 2010
Good News!
I just got the news!
Kiya officially weighs 4 lbs 7 oz!
This is day three with no tap!
Oxygen level is now .4 (yesterday was .8)!
The air flow on the cannula remains at "room air"!
A special thanks again to each and every one of you for your prayers and positive thoughts. Kiya is feeling them.
We love you Kiya! (You go girl!!!)
Grandma S.
Kiya officially weighs 4 lbs 7 oz!
This is day three with no tap!
Oxygen level is now .4 (yesterday was .8)!
The air flow on the cannula remains at "room air"!
A special thanks again to each and every one of you for your prayers and positive thoughts. Kiya is feeling them.
We love you Kiya! (You go girl!!!)
Grandma S.
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